Comments on: Tinnitus Suicide and Tinnitus Sufferers

By: charlie

charlie — Fri, 12 Feb 2010 18:35:44 +0000

Hang on to what makes you smile.I have a747 in my left ear and I am just hanging on to what makes me smile.My eight year old son.My glass blowing and some Dead music.I’m 41 and I hope to make it to 42.bless us all and just hang on and thanks to all who have posted here.

By: Garrett Viscosi

Garrett Viscosi — Sat, 10 Oct 2009 17:37:33 +0000

Hi everyone
I have tinnitus now for two years. I went to a ear nose and that doctor and was given test, it was noted that I have Moderate high frequency hearing loss in both ears. Then he sent me to an audiologist to have more test done. After all the testing that was done, there was no follow up visit by the doctor. Because in this world of get you in and get you out of the office, I felt I was not going to get the help I needed and I was at a dead end. It’s no wonder why people with this condition what to commit suicide because there is no doctor and patient confidentiality. The first thing that is said when you have tinnitus is go see a doctor, why have they help any body with this condition. You spend the money and you keep the tinnitus. I may suffer with this but what I have learned for myself is that going to an ear specialist is a complete wast of money to a cause that can’t be cured. And I don’t believe they will find a cure for this condition, just like cancer we made very little progress in 50 years if any. It sucks period!!!

By: Barry

Barry — Tue, 06 Oct 2009 23:37:39 +0000

I have had tinnitus for just about 3 years. The first one and a half to two years absolutely crushed my life. I didn’t do anything, dropped out of college and stayed in a room all day. I was depressed, crying all the time, feeling awful.

Now by now I am no means cured, but here is how I dealt with it and am able to be a somewhat normal person again (though i’m not really normal to begin with). I avoid ALL things loud, I don’t go out to bars, I don’t go to parties, I don’t listen to loud music. That stuff is GONE. I got better by relaxing on the computer, constantly playing background music, I just picked a song with a constant beat and play it in the background (still do it, doing it right now, and will do it until i’m dead). In the car, on the computer, all the time. Also, I love playing videogames and talking to people on the internet using voice chat software. So my mind was on tinnitus as little as possible. Tinnitus is like someone said up there, neutral, it’s not bad it’s no good. Do not have negative feelings towards it.

So basically, I played videogames and talked to my friends online for about two years without doing ANYTHING stressful. This sounds horrible to most of you i’m sure, but it was so relaxing and fun to me. I was able to return to school as a full time student, I am driving again and slowly rebuilding my life one step at a time. I’m very lucky my parents are understanding.

I hope you guys can use this information in some ways for yourself. The most important thing you need to do: DO something at all times, preferably something you find fun (in my case, computer games and talking to friends with voicechat software). I REALLY suggest finding something fun to do on the computer and listening to soft mp3’s. Listen to the same soft mp3(s) while sleeping, in your car etc. Watch basketball, watch UFC, watch documentaries, learn another language online, watch movies every single goddamn day. JUST DO SOMETHING YOU LIKE, do not DWELL on it, just LIVE and avoid loud noise and you will be fine. Have loads of stuff you like to do lined up whenever possible, and DO THEM, don’t just sit around feeling like crap, I did that for about 6 months, it wasn’t good at all.

Good luck to everybody.

(note: I listened to the same song for about a year non-stop, never on headphones though, it basically replaced tinnitus for me )

By: Sherri

Sherri — Mon, 31 Aug 2009 14:54:45 +0000

Paul, Thanks so much for sharing your story. I am so depressed over my tinnitus, but I constantly read your story and it gives me hope and the spiritual force to continue on. Thanks to for all those who share their thoughts. We are so close to finding real help and cures for this problem. Thanks for helping me hold on until that day. Sherri

By: Heidi

Heidi — Mon, 11 May 2009 13:50:11 +0000

Read number 23 again, and again, and again. I too suffered as Paul described and many of you have described in this blog. The hope that I would offer is what I hold on to. I mask my tinnitus, I monitor my eating, I exercise, I am mindful of medications I take, I am a member of ATA (American Tinnitus Association), I am beginning a support group in my area. I am focused on being proactive. The dark days of suffering and feeling traumatized are tangible to me, but I choose to focus on moving forward, hope if far better than desperation.

Jim’s blog #23 is worth reading and applying to your own life. It’s as simple as choosing but constant minute by minute work. You may need a good therapist to help you sift through and find light to get there. Please do this. Tinnitus may seem like torture, but there IS another way, your life IS STILL YOURS, tinnitus is only a PART it is not the whole thing. Think of all the other parts of your life and you’ll find that compared to the tinnitus it’s wonderful and blessed. Shift your focus, find you hope and move toward it.

By: Brad McBride

Brad McBride — Mon, 20 Apr 2009 21:22:25 +0000

Hello all: I was touched deeply by some of the comments. I, too, have tinnitus in BOTH ears at two different frequencies. I have put together a free tinnitus masking MP3 download here: virtualdreamer.com . I don\’t even ask your email or name. Its my personal cause to always provide a free masking download. Try it, and I hope it helps.

By: kevin

kevin — Sat, 18 Apr 2009 01:47:40 +0000

I too think the end is near at times for myself I have two sounds in my head the phantom ringing sounds like stereo high pitch an low high pitch.
ever since I had been hit in my head with a forty pound case of liquer from 14 feet high
I wish it would have done me in,My world has been torn apart by non sleep and verdigo
and my legs have been giving out my persuit of happyness is over and now I feel I am just here for no reason but to carry this sound in my head, peolpe talk about monkey on the back that aint shit compared to this.
nothing seems to be fun anymore or interesting just chasing my tail for an answer thats it.

By: Steve

Steve — Tue, 14 Apr 2009 04:08:38 +0000

I’ve had tinnitus for about 2-3 years. Not sure what caused it, but one day it was there and it’s been my constant companion since. At times I feel like screaming because it’s so loud. Other times it’s manageable. However, it’s always with me. Background noise seems to help the most. I often fear the possibility of going deaf and still experiencing tinnitus. No question I would go nuts at that stage. Right now I’m coping, but man it’s a pain.

By: oren doron

oren doron — Sun, 15 Feb 2009 12:14:44 +0000

hi
i have a very loud tinnitus
and i want to die

By: Doug R

Doug R — Fri, 06 Feb 2009 04:52:21 +0000

Neuromonics made me worse. I gave it a fair shot for more than 6 months, but I could never really tolerate it, even for as little as 30 minutes on the lowest level, as it has the effect of increasing my tinnitus and hyperacusis and misophonia / phonophobia. After exposure to sound, I basically have to spend at least ten days doing absolutely nothing but laying in bed all day, waiting for sleep. After about two weeks of doing nothing, the tinnitus and hyperacusis eventually abate to the point where I can at least get up and walk around the house without feeling electric shocks across my temples at every footstep. I warned my audiologist before ordering the Neuromonics processor that my hyperacusis has the “kindling” effect, but she seemed not to really understand what that is. ARRRGH! Now I’m $5,500.00 poorer, and the owner of a four track sound generator that I can neither listen to, nor resell, nor get any kind of refund on.

I should mention that my hearing problems are likely secondary to anxiety, which is only reinforced now that I have severe hyperacusis and phonophobia. It’s a catch-22. Wearing the noise generators was like sticking icepicks into my ears. I put up with this extra pain because I was desperate to try anything but now I’m convinced of how little audiologists understand, even those who put the word “hyperacusis” in the name of their clinic.