Tue 24 Oct 2006
Are you a chronic tinnitus sufferer and with thoughts or feelings of suicide? Please consult your medical doctor right away and ask for help. There are treatments available to help you on this difficult journey. I know, because I’ve been down that road. Chronic tinnitus feels like a nightmare and can lead to suicidal thoughts. Having said that, your life situation can change for the better. There are things you can to do that will improve your life situation. The road to recovery is possible.
The following Tinnitus Story about my Journey with Tinnitus (ringing in ears) appeared in the the June 2006 Edition of Tinnitus Today published by the American Tinnitus Association. I hope it inspires you to find the help you deserve!
“My Choice” by Paul Tobey - Copyright Paul Tobey May 2006
I have devoted my life to the study of sound. I am not a physicist, a doctor, a scientist, nor an audiologist. I am a master of sound, an accomplished concert pianist. Since the age of eight, I’ve studied the relationship between the body and the vibration of musical notes. What I couldn’t have known is that one day I would deeply yearn for the one note I would never hear again – the note of “no sound.”
Perhaps the tinnitus was caused by all of those over-the-counter decongestants I was taking for my flu, or maybe it was the stress of being at the pinnacle of my performing career, or maybe it was the news that my wife, Nancy, was giving up a good paying job, or a combination thereof. Whatever it was, one night I dreamt I was sitting on an airport tarmac between two jet engines. When I woke up, I realized this noise wasn’t just a dream. It was in my head! I rolled off the bed onto the floor in a fetal position with hands over my ears.
Over the next few weeks, I begged doctors to help me. My journey of hope began with visits to family doctors, referrals, and audiologists. Weeks turned into years with more research leading my wife and me to more doctors, shamans, and dozens of healers around the world. We live in Canada, but traveled to as far away as Japan.
What started as my journey of hope turned into a dark and painful life with bouts of deep depression. The tinnitus sabotaged my music, my marriage, and sometimes my very desire to live. The worst part was that because my injury was not visible to the world, people had no appreciation or ability to feel compassion for my suffering. I felt very alone. It suddenly occurred to me that maybe Van Gogh cut off his ear to make his suffering visible to the world – not because he thought it would stop his tinnitus.
Believing no one in the world could understand my physical pain, or my emotional burden, I turned to the Internet only to find chat groups with more stories of chronic depression and misery. It became clear I wasn’t alone in my suffering, but it didn’t make me feel better about my situation. That was when my wife became the most afraid, and ordered me to stay out of the virtual company of these sufferers, and instead to stay abreast of research through the American Tinnitus Association.
I was so busy fighting the tinnitus and struggling to make it through the day, I barely noticed my wife’s struggle with my tinnitus too. I had no energy for her personal fight to keep me alive, or to fight the Canadian Hearing Association when they told me they couldn’t measure the volume of the noise I hear (higher than their instruments could measure). I had no strength to fight the audiologist who sold me “white noise/masking hearing aids” that, despite my discipline, hope, and full cooperation, didn’t work for me. I didn’t have the energy to fight other health professionals who tried to help but whose good ideas didn’t work. They got my money; I kept the tinnitus.
My last hope, or so I thought, was an audiologist and medical doctor team who specialized in treating musician’s hearing problems. Because I’m self employed, I have no drug insurance plan. Feeling for my situation, they gave me dozen packets of antidepressants. Feeling hopeful that maybe they would work, I poured the boxes out on the kitchen table. That’s when I noticed my wife’s anger and when she gave me the ultimatum: “Paul, either you choose to live your life on antidepressants, or you choose to face your disability and conquer it. If you choose to conquer it, you will live a happy life with me and Adrian [our son]. If you choose the antidepressants, you will miss your music and your family. It’ll all be gone.” She stood there with hands on hips and said, “You choose now, because I’m ready to live with whatever you choose.”
With my glimmer of hope turning into profound rage, I swept the table with my arm, and all the pill boxes flew around the room. My rage turned into deep sorrow for my loss of silence, and I bawled for the longest time, curled up on the floor. Nancy never came to comfort me. Maybe she knew I needed to let go of my rage. She watched standing at a distance and repeated the words “You must choose now. It’s been four years, and you have to choose what you are going to do.” I sheepishly got up knowing that I would get no sympathy from her now. This was tough love. I picked up the packets, and began to flush the pills down the toilet.
I cried all night, mourning the fact that after four years, the tinnitus wasn’t going away. I had cried many times before, but this time was different. On this night, I began to surrender to the tinnitus. I knew the tinnitus would somehow have to become my new best friend.
But I wouldn’t be doing it alone. With Nancy and Adrian by my side, my tinnitus healthcare team at the ready, a new spiritual mentor into my life, I was introduced to books about the theory of mind, body, and spirit. I kept a journal of what I ate, how I lived, and my thought processes. Over a period of time, I learned by trial and error that I could control the volume of my tinnitus by completely eliminating wheat products, milk, caffeine, yellow vegetables, pork, salt, red wine, and citrus fruits from my diet, and introducing a high-protein diet of beef and certain types of beans, plus broccoli and other green vegetables. What I eat seems to control the volume of the tinnitus. I learned that exercise, sex, meditation, and playing the piano kept my mind off of the tinnitus for long stretches of time. I learned that my negative thought processes had kept me focused and addicted to my tinnitus, and that I could actually control my thoughts to take the focus off of my tinnitus. I learned that no one else in the world was empowered to heal me, and that I would ultimately be responsible for my own healing.
Seven years later, I am a completely new person. Tinnitus has transformed my life – in very positive ways. Because of the tinnitus, I have walked an 850km pilgrimage across Spain, produced spiritual films, composed symphony music, became a certified motivational trainer, and am currently writing my first book. I am healthier, wiser, more grounded, humbled, and very grateful for my life.
Because of the tinnitus, I now teach people how to find their inner strength and use it to conquer their mind’s attachment to illness, vulnerabilities, emotional burdens, and fears. And yet, with all of my professional credits, nothing in my life’s journey comes close to my personal accomplishment of conquering my tinnitus. No, I may never experience silence again. But tinnitus now serves as a beacon in my life. It is no longer the cruel enemy that once controlled me.
As a master of sound, I can tell you that the most beautiful sound I’ve ever heard is the suspended space between two musical notes – that open space of “no sound,” of silence. It’s such a great gift. But I’ve learned that other profound gifts do come, and from the strangest forms of suffering. As my loving wife once said in one desperate attempt to save my life, “It’s your choice.” And so I’ve chosen.
For more information about Paul Tobey and Tinnitus visit
http://www.paultobey.com/tinnitus/
January 17th, 2007 at 4:09 pm
you might be interested in reading the recently published book entitled, The Ringing Sound. i found it intriguing in relation to tinnitus studies. peace
April 14th, 2007 at 10:36 pm
I have been battling Tinnitus for a few years and I must tell you it is Hell on Earth. I never dreamed ringing ears could be so hard to deal with. I am open to all suggestions on how to deal with it.
Thanks
T. Miles Lee
May 28th, 2007 at 8:22 am
I am 29 years old and I have been living with tinnitus for ten years. I am not the same person i was before, even though I am still alive, tinnitus killed the girl I was. They said “learn to live with it”, unless I die trying.
October 13th, 2007 at 11:35 pm
For a short time my tinnitus almost drove me nuts. To make a long story short I realized I only had one choice - acceptance. Don\’t fight your tinnitus, accept it, embrace it (honestly). Less than a year later, I now laugh at my tinnitus, I make jokes about it. My ears ring steady but I am actually happier than I was before. You can be too. Just never give up believing it will happen and slowly you will get your miracle.
December 8th, 2007 at 12:29 am
My friend’s father just killed himself because of his relentless tinnitus.
He was in his mid-sixty’s. Completely healthy, except for the tinnitus…..
She is going through hell wondering why her beloved dad could do such a thing.
Can anyone help me explain this disease and the subsequent suicidal tendencies thereof to her, in a way she can understand?
She’s hurting desperatley.
many thanks in advance,
Rachel
December 8th, 2007 at 3:22 pm
Hello Amanda -
Your comment on May 28th,2007 - I was very touched by your
comments.
That is exactly how I feel - since my tinnitus started for the 1st time 2 years ago - the person - the girl I was - died inside me
forever.
I am sure I will be dead within 2 months - I\’ve made all plans -
and this life is simply Hell On Earth - I can\’t bear it.
Cause of my Tinnitus: ear cancer surgery done by completely
inexperienced medical students - they destroyed me.
Amanda - I just wanted to tell you - that you are not alone -
I know how you feel.
Best wishes to you Amanda!
Tam Millican
taminkc@comcast.net
December 21st, 2007 at 5:26 am
sometimes there is no relief. Ive been a musician 4 25years and its so fucking loud at the moment that not now but when you know that other sound in your head is enough is enough. this is not a cry for help but i have come to the understanding that my brain by b.s is activating too make up 4 the sound it nolonger hears., isnt it ironic. Ive hade have p.t.s.d sexual abuse alcohol addiction and now this 4 the last year. my reptillian id instinct the freudian death drive has licked in. Camus nietzsche etc, were right life is absurd. all the best az
February 26th, 2008 at 1:41 am
I’m 22, and I got tinnitus 2 nights ago. I was at a nightclub with some friends, and I wasn’t in front of the speakers. I rarely go out or listen to loud music. The DJ must be deaf, or I just have…*had* hyper sensitive ears. I’ve lost a small percentage of hearing, maybe 15%, and it sounds like I’m underwater. I’m upset about that, but NOTHING compared to the constant ringing I hear. It sounds like a TV is on, but louder. I actually cried at work today. I can’t live with this. Is there a way to disable your ears entirely?
February 26th, 2008 at 10:02 am
Hi J,
I would strongly advise you to visit a ears/nose and throat dr ASAP. Exposure to loud noise can cause ear damage and tinnitus, however, your symptoms are very NEW and can be as a result of something else entirely. The good news, is that in some cases, tinnitus may be temporary. Pls. consult a professional to see if your symptoms can be remedied. In some cases, they can.
I’m not sure what you are asking me when you ask ” Is there a way to disable your ears entirely?”. I’m not a medical professional, and this is a question for a professional. However, as a recovering tinnitus patient, I’ve heard lots of drama around this type of plan.
The famous artist Van Gogh cut off his ear in an attempt to stop the ringing in the ears, but that didn’t work. Some report that patients have cut their auditory nerve and still can hear the tinnitus. And some people who are completely “non-hearing” can still can “hear” tinitus. So, no, I don’t recommend that you disable your ears entirely. It’s not a good plan.
A better plan would be to take action and go through the process of finding out if your hearing loss is associated with your tinnitus.
If you wrote into this blog, it means you are looking for relief from your tinnitus NOW! There are temporary coping methods:
Put a fan in your office that runs all the time. Put one in your room. Keep an ipod around and listen to inspirational and motivational speakers…or to meditations while you sleep.
There are maskers you can buy, and lots of people will want to sell you drugs, or gadgets, or miracle cures. You can download a free tinnitus report on this website that will tell the top 6 things you can avoid to help your ringing ears.
Spiritual authur and teach Eckhart Tolle: just released an amazing book. I’m a huge fan of Eckhart as his book “The Power of Now” helped release me from the grip of suffering from Tinnitus. His second book, A New Earth has now drawn the attention of Oprah.
Consequently, Oprah is offering a free course, which I highly recommend to those coping with ringing in ears. I think if you look into this book or audio, this will help you cope and steer you towards answers you may be looking for.
Or, if you want my help, look into my tinnitus audio downloads and workbooks “Tinnitus Free Living”. My teachings come from my personal experience and have helped others on their journey towards healing.
Whatever you do, take action “now” towards healing. There is no mysterious force in the universe that causes random suffering. Therefore, you must find out what this call means to you, and how this will help you in your life’s journey.
Paul
April 13th, 2008 at 6:57 pm
I’m determined to find a solution. In this age of technology and advance medicine, there has to be an answer to this particular problem. Right now, I’m eating fruits, veggies and take an assortment of vitamins and minerals. I’ve found that Lipo-Flavonoids actually help and decrease the volume of tinnitus. I’m also using COQ10. Combined, they seem to have helped.I’m also exercising every day very hard - at least an hour and that always helps the ringing.
There are devices out there - most recently one came out of Australia from a a company named Neuromonics….cutting edge i-pod type device that can be customized to the pitch of the rining. AFter a 14 year clinical study, this device either cured or nearly cured everyone who used it.
April 25th, 2008 at 9:52 am
My sister’s name is Tam - she posted a comment to this website (see above notes). This website seemed to help her with her tinnitus. I would like to see more solutions to this terrible ear condition posted to this website so that maybe it will help others.
May 11th, 2008 at 9:01 pm
Have suffered severe tinnitus 40+ years. There is no alleviation, or cure. It is nonsense, deception and greed offering you relief. Harshly honest, I proffer only three accomidations. Alcohol, sleeping pills, or…. We do not wish to go there…75% do. Cheers!
October 7th, 2008 at 6:48 pm
Pual, huge thanks for putting this up. I too am a musician and I developed tinnitus three months ago. I’ve had a lot of painful emotions recently that you were able to nail right on the head and put into words far better than I could. Right now I’m in a stage where I’m done with denial (had a similar night of letting it out) and trying to change things for the better. Tinnitus really is something you need to work with in order to continue your life. There is no way to avoid it. Once you work with it, you can start to return to how things were before. I know there is a huge feeling of, “Now things are different, I’m dead inside and can never go back”. Yes, things are different, but that doesn’t need to mean life can’t be fun and rewarding again. I’m at a stage where I’m learning to manage the tinnitus, and already I’m start to find that old familiar feeling called “happiness”.
One thing everyone can do is educate those around them about tinnitus. When you see a 10 year old banging away at the drums in his garage band, give him a spare pair of ear plugs (the ones I buy always come with multiple sets of plugs). With it’s level of impact on peoples live’s, tinnitus really is something people should be aware of and take active precautions.
After reading countless hours of peoples accounts of tinnitus, I felt it was my turn to give a little back. I too have thought about suicide, (what do you think I google searched to find this page?), but if you are still able to feel happiness (which I’m sure you can), there is still a reason to live.
October 13th, 2008 at 5:21 pm
Ringing in my ears came & went over 2-3 months but is now permanent & couldnt believe it at first, but now i do. Cant say i have accepted it but can say that it sucks & sometimes drives me crazy.Makes it hard to sleep & sometimes increases in volume like a high pitched jet taking off but covering my ears does nothing.I understand why it can make some people choose suicide.
October 24th, 2008 at 6:30 am
Hi. I\’ve suffered many years and I live half a mile from Niagara Falls. I can feel it\’s rumble every day. And I know I can go jump in the river and go over anytime. However, here is my self-cure. Although I have to work in public everyday when I can I keep my shades drawn. I pretend that outside is a world of millions of giant crickets and that we all hear them and there is no escape. No matter where I am outside are trillions of crickets. They are not dangerous they are just there and we all suffer from the constant drone. Everything that everyone has posted is true as far as my own problem is concerned. When I think back and remember I how I got this horrific problem then it\’s not so irritating. Texas music every night. They were the best days and nights of my life and what I\’ve got is because of that. Just wish someone had mentioned I should\’ve wore ear plugs. Thanks for the blog Paul. Niles
October 24th, 2008 at 2:11 pm
Hi Niles,
Thank you so much for your post and your insight. I like the idea about the crickets, hadn’t thought of that one!
Keep in touch and feel free to post any other successes that you’ve had on the blog.
After doing this for so many years now it’s amazing how everyone who suffers from tinnitus has a different perspective.
All the best,
Paul Tobey
October 27th, 2008 at 10:42 am
I am now 31 and have lived with this curse since I was 19 and although it is easier, it is not easy…I have a family and they are all I continue to live for…I tried to email the person who reponded to my comment however I recieved the message Delivery to the following recipient failed permanently…I am heartbroken to think that another life has been lost and fear I missed my chance to help, but I go on… if there are people out there who need to talk to someone who knows what you are going through and living with please feel free to email me at survivetinnitus (at) mail.com
October 27th, 2008 at 10:44 pm
I suffer Tinnitus in both my ears..
It’s loud ringing at times.
I have found cannabis to be of some help with knocking the ringing level down and helping me get a better nights sleep…
November 9th, 2008 at 11:02 am
I have had tinnitus for 2 years after a very bad ear infection, which was wrongy treated by my local Hospital. I would give anything to have my peace of mind back.
November 11th, 2008 at 10:22 am
I don’t know what to make of it and I’m certain it’s only temporary but for the moment, this wonderful wonderful moment I have no ringing in the ears. No crickets. I felt compelled to come here and share this with all of you who suffer. I’m just going to sit here and enjoy silence. I just washed every dish in the house. Maybe that’s my cure, washing ALL the dishes, being emersed in hot sudzy water. I don’t know. First thing I did was write to my girlfriend who is at work and told about this brief moment of silence (wonderfulness) and then I said I’m sorry if I complain too much when the ringing and crickets are too loud. perhaps this provides a glimmer of hope. I’m relishing the moment.
November 11th, 2008 at 7:59 pm
Well, it was great while it lasted. But it’s not as bad now as it has been for years on end. It’s there though. More cope-able this minute. I even wrote about it in my diary that I hardly write in anymore. I’m going to remember this day for a long long time. This day gave me a chance to make amends to those friends whom I’ve managed to push away. Let’s just say that I’m a better person today then I’ve been for a long long time.